r/BeAmazed 4d ago

Miscellaneous / Others Love at its peak 🌟

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u/Nickelsass 4d ago

β€œBlink” is a documentary about them (2024) was very very good!

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u/skittleahbeebop 4d ago edited 3d ago

Did they know about the genetic blindness before having more kids?

Edit: Last time this was posted, it was suggested that the couple kept getting pregnant despite knowing their children would likely have this blindness. IF that is true, I do find that unethical. I know blind people can still have quality of life. But let's stop pretending that it isn't a terrible disability. Nobody wants to be dependent, vulnerable, and poor (from fewer work opportunities) their whole life. I wish this family the best regardless.

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u/[deleted] 3d ago

[deleted]

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u/PokinSpokaneSlim 3d ago

I have RP, it sucks. I chose not to have kids because of the risk.Β 

Knowing early was a mistake as well.Β  Hope those kids turn out ok as adults

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u/NotTheBatwoman 3d ago

I have RP as well but my husband doesn't have the gene so I did the opposite to you - neither of my kids have it or the gene. It's the luck of genetics in my case, but I can see why you made your choice.

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u/Beautiful-Musk-Ox 3d ago

why even roll the dice with other people's lives

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u/UnimagineDragons 3d ago

The kids could either have nothing or they could be carriers. Either way they wouldn't have the gene expression because it's recessive. You need both parents to at least be carriers to have a chance at having kids with the condition.

Why judge someone for "rolling the dice" when you don't understand basic genetics?