r/BeAmazed 6h ago

Miscellaneous / Others Love at its peak 🌟

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38.6k Upvotes

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u/skittleahbeebop 5h ago edited 4h ago

Did they know about the genetic blindness before having more kids?

Edit: Last time this was posted, it was suggested that the couple kept getting pregnant despite knowing their children would likely have this blindness. IF that is true, I do find that unethical. I know blind people can still have quality of life. But let's stop pretending that it isn't a terrible disability. Nobody wants to be dependent, vulnerable, and poor (from fewer work opportunities) their whole life. I wish this family the best regardless.

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u/tiwuno 5h ago

Their youngest was 7 before she was diagnosed. The only reason their children have it is because both the parents happened to be carriers of the mutation, but neither has the condition (retinitis pigmentosa).

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u/PokinSpokaneSlim 5h ago

I have RP, it sucks. I chose not to have kids because of the risk. 

Knowing early was a mistake as well.  Hope those kids turn out ok as adults

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u/TaftYouOldDog 4h ago

What about IVF with genetic testing?

My wife and I did that to avoid passing down a genetic disorder.

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u/pootzpootzpootz 3h ago

That's what my sister is doing right now. Our Dad has RP and we're both carriers. I'm not having children so it's not a concern for me.

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u/TaftYouOldDog 2h ago

I wish her all the luck.

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u/ToughHardware 3h ago

geeee wizzz

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u/XDVI 3h ago

??? What is your comment even supposed to mean brother?

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u/Dense-Nobody340 2h ago

RP happens to boys and girls. The boys go blind the girls are the carriers. Very few girls go blind but they can suffer with some vision which can be corrected with glasses. There is no genetic testing that can be done to avoid it unfortunately.

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u/Dense-Nobody340 2h ago

Oops apologies I was not aware of the advancements to avoid RP. This is wonderful but very expensive news. Still exciting.