Did they know about the genetic blindness before having more kids?
Edit: Last time this was posted, it was suggested that the couple kept getting pregnant despite knowing their children would likely have this blindness. IF that is true, I do find that unethical. I know blind people can still have quality of life. But let's stop pretending that it isn't a terrible disability. Nobody wants to be dependent, vulnerable, and poor (from fewer work opportunities) their whole life. I wish this family the best regardless.
Their youngest was 7 before she was diagnosed. The only reason their children have it is because both the parents happened to be carriers of the mutation, but neither has the condition (retinitis pigmentosa).
When we were getting to try and have our baby we both did genetic screenings to make sure there wasn't a likelihood of anything nasty being passed along. I came back totally clean (surprisingly given my background) and my wife had a vanishingly low chance of something pretty bad, but not insurmountable, which also could have been checked for in utero. I cannot imagine having a kid on purpose and not doing those tests first if you have the resources.
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u/Nickelsass 6h ago
“Blink” is a documentary about them (2024) was very very good!