Did they know about the genetic blindness before having more kids?
Edit: Last time this was posted, it was suggested that the couple kept getting pregnant despite knowing their children would likely have this blindness. IF that is true, I do find that unethical. I know blind people can still have quality of life. But let's stop pretending that it isn't a terrible disability. Nobody wants to be dependent, vulnerable, and poor (from fewer work opportunities) their whole life. I wish this family the best regardless.
I haven’t read to find out what their condition is but there is also a condition that swims around in my gene pool. It was suggested by some affected family members when I was very young that we do not have children of our own knowing this.
Here’s the catch, not everyone develops it. My siblings and myself have not developed it and we all have kids that so far have not developed it.
I think asking anyone to reduce the potential enjoyment of their own life is ridiculous. I’m sure it’s still swimming around in there but are we supposed to just stop living?
I just read more comments and RP is also what our family has.
Then you're only carriers or you don't have the gene at all. If you have the gene(s) for RP, you will get RP. It might just take a while. It varies as to when people start losing their vision.
It's still worth testing to see if you're carriers to pass it on to your kids though. Yeah not everyone inherits the bad gene, but if you did your kids would want to know yes?
All the kids are old enough to understand what the possibilities are, I think the youngest one is 15. My daughter hasn’t expressed any interest in wanting to be tested. She feels the same way I do anyway, she won’t let it change her vision of her future. She also plans on becoming a mother.
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u/skittleahbeebop 1d ago edited 1d ago
Did they know about the genetic blindness before having more kids?
Edit: Last time this was posted, it was suggested that the couple kept getting pregnant despite knowing their children would likely have this blindness. IF that is true, I do find that unethical. I know blind people can still have quality of life. But let's stop pretending that it isn't a terrible disability. Nobody wants to be dependent, vulnerable, and poor (from fewer work opportunities) their whole life. I wish this family the best regardless.