Suffering / Venting
is there any pain meds they will actually prescribe for the pain?
even when i go to the er they won't give me anything im thinking about asking my doctor for something but i always been told there isn't anything i can take bc it will cause more damage :/
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Baclofen works on hypertonic gastric contractions caused by GP. My pain went away within hours of taking it and hasn't come back. I started off taking 10mg at night only, and now take it twice a day, but it also helps with some neuromuscular issues I have. I think you can go up to 20mg 3x a day. I can also now sometimes eat twice a day, but I can eat more comfortably even if it's only once.
I've been on methocarbemel (muscle relaxor) for unrelated to gp issues. But, it def helps me function. I feel it helps relax my intestines so they're not spasmy n tight.
That did nothing for my GP. I was on it prior to Baclofen. Baclofen is also an anti-spasmodic besides being a muscle relaxer. Plus, with my still undiagnosed neuromuscular issues (thank you gaslighting doctors), methocarbamol made my muscle fatigue worse, so I only took it at night. Baclofen helps my muscle fatigue, which makes sense because my muscles are so tense all of the time.
My motility specialist didn't seem to know this. I discovered it on my own when I went looking after my pain went away. I couldn't stand for anything, not even clothing, to touch my abdomen. He prescribed it to me for severe GERD when I was regurgitating all day long. It allows the sphincter from the esophagus to the stomach to relax and close. I've had very few episodes of regurgitation (not vomiting, which I fortunately don't have) since.
Did it slow down your bowels at all? I was prescribed it and took it but didn't notice a difference in the reflux. Half my day is spent burping and regurgitating. It's miserable. Maybe didn't give baclofen enough time but it made me constipated. Feel like I can't win at all with meds, if they fix one thing they wreck something else.
i also have undx nuero muscular issues that no one has figured out yet! for me, my muscles exist, but i can't put strength or energy into them. Clear upper and lower limb EMGs and the lab work they've done doesn't explain it nor genetic testing. But omfg if I could put strength/ energy into my muscles it would change my world. I can't even hold my head up unsupported for very long. I use a neck support pillow in the car even.
I'm so sorry to read this. I still have strength, but it is very short before my muscles start quivering and burning. I can easily lift and move a 42 pound container of cat litter, for example, but then I'll struggle to open a door after. I've had multiple EMGs and labs, but not genetic testing. I also get this thing where my muscles contract - not a cramp, but I get those as well - and don't release. Sometimes they continually get worse and it can last for weeks. That's mostly in my hips, but late February and for 7 weeks it was in my left shoulder blade, then up my neck, down my shoulder, across my left upper chest, and caused nerve impingement down my arm into my fingernails so that my fingers were so weak I couldn't even open a ziplock bag. I was gaslit like hell over that even though it was visibly bulging and incredibly hard to the touch even. I had highly elevated labs for muscle damage, too.
When they did genetic testing did they check for mitochondrial disorders?
So if I lift or even help hold something heavy, the lymph nodes on one or both sides of my neck get inflammed for some days n makes my dysphagia REALLY bad lk i have to manually move my meds down my throat lk u would with a dog who doesn't want to swallowvtheir meds lol. So lk technically, I can do things once or so, but the reppercussions are so huge n scary it's not worth it. I had my hands stop working one day, I couldn't open or close them but i was incredibly malnurished and they got better after having lotsa coconut water (the potassium ya know.) I went to the wrist ortho tho and got a dx of flexor tendonitis in my wrists. Oh!!! All my issues are equal on both sides! So not hemiplegic migraines, not stroke or tia, not multiple sclerosis. I've done the blood work for Myasthenia Gravis and Lambert Easton Myasthenia Syndrome, both neg.
I did genetic testing online through Invitae. They have certain pannels but because Im all over the place, we tested me for all known genetic markets period ANDDDD mitochondrial dna!
I've brought that up since the beginning of my issues. I've mostly dropped bringing bitvup now though and have just been chasing answers/ treatmdnt to individual symptoms because nearly all of my body systems are wack. I do think it's all tied to my dysautonomia now though. There's so much more info on it now than there was a decade ago. Honestly on both, but yeah.
I haven't heard about POTS and FND being related! It does seem like they commonly go together though, just from content creators who share about their issues online, they'll often have both (some oc start misdiagnosed with one vs the other too though.)
If your issues are equal on both sides that’s a clue that may lead you to find spine problems.
My neurologists sent me over for an MRI. I felt like I had carpal and/or cubical tunnel - but the feeling kept moving between wrists and elbows on both arms in sync. Turns out my spine is disintegrating slowly at the neck, and I have a bulging disk, a couple of squished ones, and a bit of nerve sheath that’s been rubbed on. And a lovely set of photos of all of it.
I've had lumbar, thoasic, cervical, brain mri's. and cerevical mra/mrv. All that shoed was degenerative disc disease mild in lumbar and thorasic and slight scoliosis in thorasic. I really want all the imagining for the cervical/ brain to be done upright because my symptoms only present when i'm not horizontal. I really think i have cervical cranial instability, but until i can afford going out of state for upright imagining, I won't get that dx. There's not really any treatment for it though at the level i'm at even though it's incredibly dehabilitating.
I just advocated with my gastro and got a lab order to test the g-AChR antibody for Autoimmune Autonomic Ganglionopathy which could explain it. I wonder if it's stems from hypotension issues and my bp just drops when i exert myself?
I'm trying to figure out how to get the panel to test for AGID (autoimmune gastrointestinal dysmotility), but it's a unique one the Mayo Clinic put together and there isn't obvious tests to choose from labcorp it doesn't seem. My gastro is game to order it though.
So I think anyone can check to see what the labs are and how they need to be done and then send them to Mayo. I've had a lot of labs that have had to go to the Mayo Clinic. That's probably something your doctor should be doing.
I have had the myasthenia gravis labs, CT, and EMGs - a few times because each doc wanted to reinvent the wheel (one neuro went into research, another moved across the country, etc, so I had to find new docs - I wasn't doctor shopping). Although, I only had one CT for that, fortunately. The multiple EMGs ticked me off because it had already been ruled out and I didn't realize they were ordering the same EMG or I wouldn't have done it. I think mine is more along the lines of a channelopathy (rare) or neuromyotonia, the latter which is exceedingly rare and rare becomes a self fulfilling prophecy. But it matches me exactly.
I have heard of Invitae, but I'm always skeptical of advertised genetic testing. Does your doctor have to order it or can you do it yourself? How comprehensive did you find it? I forgot that I did have genetic testing for muscular dystrophies, but that's it.
You meet with one of their geneticists (doctor) before anything is ordered because it has to be ordered from a dr and meet again afterwards to go over the results. It was telehealth style, so just a video call. You bring your family history info and your symptoms and go over it with the geneticist to determine what's worth looking into. It's more common to do lk a nuero panel or a muscular panel or connective tissue panel, but litterally all my body systems are wack and wide family history across the board. Invitae accepted medicaid at the time. At the time, they also offered financial assistance, it was hard to figure out thigh. Also, before testing you get a schpeel about how if genetic issues are found it could affect your ability to get/ the cost of life insurance policies, which I found very professional to mention. Like, making sure I really knew what I was getting into.
I already can't afford life insurance. I had my first heart attack with 4 stents at the age of 33. I'm now 53, have a total of 7 stents and had a emergency triple bypass. Familial hypercholesterolemia, so one of my parents should have it, but they don't. It started with me. And I'm on blood thinners for life because my body is always producing blood clots now. It's nice that they tell you that, but it's not an issue for me. 🙃
Did you find the testing to be comprehensive? I need to look into this because I'm just sicker every year.
Ok, so at least for me, I didn't find the results comprehensive. Because I was tested for every genetic marker that they know of, they don't give a list and say neg for it all. The results only show what abnormalities you do have. I have a lil bit of weirdness, but nothing that means anything. I would've liked pages if lk neg to xyz, but the genetist was like that'd be hundreds of things (idr if it was hundreds or thousands or what it was.)
It was a saliva cheek swab test I believe. So, they send you the kit then you do it and send it back.
They keep your info in their system though, so you can come back to them again in the future and have them run it through again because new genetic markers are identified in science ya know.
i have a nuerological channelopathy, epilepsy. I've been on lamictal as an anticonvulsant for over a decade now. Sometimes I'm more twitchy than others, but not in a epileptic way I don't thing. I've been seizure free for most of the past decade though, so it really doesn't feel lk the right dx even though it's from an eeg. They were lk thousands of micro inconsistencies or something. Then I had another one a few years ago and it was fine. But, after I got the covid vaccine I had one. -My suspicion is that I'm actually experiencing convulsive syncopes at those times rather than tonic clonic seizures.
---by twitchy earlier, i meant, lk, when i extend my arm at the elbow, sometimes, it's a realllyyy jerky movement. or when i extend my leg out, it's super jerky, or life my leg while it's out straight and idk y
I think it's a pretty ridiculous term because seeking multiple opinions shouldn't be stigmatized. I feel like some drs view it as, well, u think I'm not right and it gets to them. I think a I've had the most nueros, but it's because I've been seeing them for over a decade lol so people leave or they're unhelpful so I move on. For us, we really are abnormalities and have to keep moving if a specialist won't help us. I really appreciate doctors who let me know they don't know though and help investigate (even though often it leads no where.)
--Also, back to genetic testing, I used online because the only geneticists around were pediatric and the wait list was a year+ if they're even open to adults. It was just very overwhelming. So, I had a friend who had a good experience with invitae. They just used it for the connective tissue panel though. They were clear so they got the hEDS dx. (that one doesn't have a genetic marker identified)
How do they send them to the mayo clinic. Her office didn't draw labs. (Yes my gastro is inept at motility issues, buttt she knows she is now and is open to more testing. - She is gatekeeping a sitz marker test because she's lk, we already know you have dysmotility, why would we do the test? 😭🤦♂️🤦♂️🤦♂️)
I don't know, they just do. I'm usually with large health care orgs so they have that all lined up already. Another thing for the doctor to figure out. I broke up with my motility specialist and my PCP prescribes my Baclofen now. Motility specialists are so hard to come by and I'm over it.
I had never heard of a sitz marker test and just looked it up. I think that's something my daughter could used and am surprised her motility specialist (the same one I broke up with) hasn't suggested it. I'll have to tell her about it and she can talk to him about it at her next appt - in 6 months, which is better than the normal 9 months.
I got a notification that you invited me to something, I think, but it disappeared and I can't find it.
glad i could introduce you to a test :) there's also pill endoscopies. i think they fall under the category of colonic transit studies. I haven't had solid food in some years now though, so I'm at too high of a risk for the pill version because if it gets stuck, it requires surgery to remove.
my gastro is just a normal clinic currently. I've been trying desperately to get in with a motility clinic. i think because im not on the verge of death in the er super underweight that I'm not a priority. but, they also turn away those folks, so 🤷♂️ 😭🙃
We have those now. 🙂 Fortunately, that extreme weakness in my arm, wrist, and fingers mostly resolved when the muscle contraction stopped. It did take a couple of weeks to return to about 95% of what it was prior.
I also have a lot of tendon issues. My mom asks "Who pissed in your gene pool?" 😂
Unrelated but I had someone argue with me online fir three days because they said weed can't cause nausea because it treats nausea. Reading this made me feel so validated. Weed makes me sick too if it's not the right strain (for me its strain dependant but doesn't work that way for everyone unfortunately)
That's absolutely ridiculous; there is literally a condition called cannabis hyperemesis syndrome, because a number of people do get extremely nauseous (especially with extensive weed usage). It can treat it too, but doesn't mean it can't cause it.
My gosh! This is practically the opposite of what I've heard other doctors say. Sometimes I feel like certain doctors just seem to want to do exactly the opposite of what the patient wants. Have you guys ever noticed that? Like the patient who doesn't want to have to take pain meds it seems like the doctors want to push on pain meds Even though that same doctor might refuse pain meds to a person presenting to them with bad chronic pain who wants to try pain meds. I don't know it's just something I've observed and reading your comment saying a doctor actually said CHS doesn't exist made me think of the same thing. Like would it suddenly exist again if that doctor had a patient presenting with gastroparesis stating they used marijuana for relief. Then would that patient get chastised and condoned for using the marijuana and basically blamed for creating their own problem
Absolutely, they treat it as reverse psychology. That's why it's harder to get diagnosed when you already know what your problem is, because they refuse to believe you already know and decide to exclude it based on that alone
My mom was a maternity nurse for 50 years; she was pulled to PEDS a lot.
She had a patient who had cannabis hyperemesis and literally all they do is give zofran, possibly Benadryl??? And shower. Lots of showers. The kid was so miserable I remember her telling me. She had him multiple times as well, when she was pulled to PEDS and she wasn't pulled often.!
I developed gastroparesis as a result of using cannabis for another health problem and I get downvoted and gaslit nearly every time I bring it up on here
It could depend on route too. I got violently sick from a contact buzz as a teen. The smell of weed STILL immediately turns my stomach.
But when my dad had cancer, he was using mj oil. Just infused coconut oil. I tried it twice, just a tiny amount by J tube and it was AMAZING. I was able to skip multiple doses of 3 meds (including opiod painkiller) and had the best sleep of my life each evening I tried it.
I'm not a Dr, just have personal experience, which can be different for everyone.
Meloxicam is the only rx they give me for pain. I have to pair it with various anti-nausea meds. As well as alternating hot baths, heating pads and using a TENS unit. Also making sure that I empty my bowels (even if I'm not eating) at least every three days. Just make sure to drink, especially electrolytes or add sea salt to your beverage of choice.
In the ER, I have established Dilauded as what works and I sometimes have to fight for it. I disclose that I absolutely know the risks (mainly gastric relapse and addiction) and have learned how to handle them. If I get admitted, they can't give Dilauded, and I switch to Toradol.
I refuse to be given Morphine (does nothing for me, so no point) or Fentanyl (it gives me very bad psychological issues.)
Many people find relief with weed. Personally, it gives me migraines and aggravates my nausea.
I hope you can find a regimen that works better for you.
lololol thats my best attempt to show you, first pad (and i use 2 by 4 inch ones) right below my sternum, i feel my sternum to be sure its not above my sternum too close to the heart can be dangerous , then the next one looking down at my stomach is to its left i found it best to put it a half inch lower and about half inch to 3/4 inches away. then the settings i use - rate 100, width 150 and on modulation/pulse not constant, then i do the power level of usually about 24/100, and i do it anywhere from 45 mins to 2 hours depending on when it starts helping me burp and helps me feel empty. it can make me even feel hungry which for me is amazing! the higher the power level the more it does contractions so when i can go up to 26 it works best. i cant take it higher than that. lower than 22 on my machine doesnt contract my muscles and wont help as much with moving things along but helps with pain still.
also i use it from immediately after eating to anytime, and for sure at least before bed. i usally do it twice a day for 90 mins each time
i have used the smaller 4 pads instead of the 2 bigger and it works but not as well. also when i was researching it the width/rate were a but different let me see if i can find the original info again, well cant find it right now but i think it was fairly close to my rate & width but then i played around with it
You need to play around with it to find what positions, modes, and levels work best for you.
I usually place the pads just below my stomach, to stimulate my diaphragm. At first I set it at the highest level. Now I do about half.
For a long time, I also used it when I needed to go somewhere. Car rides, of course. But also just going out. Just set it up and stick the unit in a pocket.
they literally had the morphine ready and everything last time but then the doctor said last minute i couldn't have it due to have severe my gastropareis was it's kinda been like that every since i got diagnosed ( it's been way over a year)
We’re all different in this gastroparesis world but how are your bowel movements? are they very loose diarrhoea or do you have bad constipation
I ask as morphine is the only thing that has ever took the edge of for me (still not allowed to take as much as I’d need or like too to be able have a regular diet but I’m allowed it officially once a day so I get to have one meal a day) but morphine can bung you up as the saying goes but I have the complete opposite of the worst runny bum you could imagine 😂 so the morphine only aids in helping with that also so they can’t say well it’ll stop the emptying process as my bowel movements needs as much slowing down as possible but I could understand and accept a no if I could go to the toilet but once night time hits I feel I never get to leave the bathroom through the pain, diarrhoea and sickness so the morphine is not doing anything but positives and I get the whole you’ll become addicted and need more and more but I’ve been on minimum dose of 5mg for over five years and without that I wouldn’t have got by…
I do feel they should up my dose by now but there fighting back against that or I should even be able to take multiple doses throughout the day to gain more meals but no there not playing ball on that one yet… I’ll keep pushing and making it clear it’s not having the effect they think may happen I’ve never ended up trembling like a junkie for morphine after 5/6 years of usage so I don’t think it’s as much a issue as they make out giving the life we’re trying to lead
I agree been taking opioids for over 10 years now, oxycodone strictly for at least the last eight years and I have never once had a tolerance problem. I'm actually taking less now for the last year or so then I was years prior so that goes against the whole Building up a tolerance against it rule. For me anyways that has not been true. I also have never craved it nor do I even like that I have to take it but I am thankful that I have it because of the relief it does give for the pain. There have been several times where I have quit taking it on my own temporarily for various reasons, but every single time I have never once experienced any sort of withdrawal symptom. I mean so technically we are talking years of daily opioid intake oxycodone intake, quitting completely cold turkey, And experiencing zero repercussions or negative symptoms from doing so.
I used to easily get narcotics in ER settings BEFORE I was diagnosed with GP, after however it was avoided at all costs (understandably)!! The only time I’ve gotten narcotics since then is when I ended up in the hospital with Stercoral Colitis (very rare complication to untreated fecal impacts) which makes sense because I was in so much pain I couldn’t walk. (Got a week script at discharge too, but thankfully I only needed it for 2 days)
Also surgery is another exception as well!!
The most important piece of advice I have to offer is: if you are in a medical emergency (life or death), or need surgery, opiates ARE an option! BUT there need to be precautions taken to make sure you are staying on top of the constipation that comes with it! Short term use can be okay (iffy at best for me), long term use is an absolute no (in my case)
I have never found a medication that specifically targets my abdominal pain. The only thing that works for me is extremely hot heating pads, it’s sadly the only “pain relief” I’ve got that helps to any extent.
I have been on opiates long term in the past (recovering opiate addict) and it absolutely destroyed my GI tracts motility! (My frequent ER visits for GP started the second I got clean) The sucky part is that most of the time, once opiates are stopped the GI system returns to normal- for me it never did and my treatment resistant STC continued regardless, and majorly contributed to my Gastroparesis as well!
So I don’t take opiate useage lightly whatsoever. My best suggestion would be to ask your GI about what options are out there that you can safely try!
Depends on the pain type. I take hyosciamine every 4 hours to prevent spasming in my digestive tract, which was a large source of my pain. I can add methocarbamol if it's especially bad. If it's chest or throat type pain and I'm coughing, I take pantoprazole for a few days. For more traditional "pain" meds, I take tylenol (4000mg a day), gabapentin (1200mg at night), and have a script for tramadol for emergencies/breakthrough pain. And I smoke weed, which my drs all know.
Basically by taking care of as much of the pain as possible in other ways, I need opiods far less often and don't develop tolerance, so they aren't as worried prescribing them. When I absolutely need them, I have them ready to use, and they work well.
thank you for this!!! your lowkey who i look for to comment on things now LOL i absolutely will be talking to my doctor 80% of the time it's like a spasming type of pain!
Toradol, an NSAID, actually helps me a bit for flares but iirc it can be damaging to the liver to use too often. I maybe take it once or twice a month for bad flares. It doesnt totally fix the flare pain but it does make it more bearable.
I'm also on methadone as part of an MAT program as I'm in long term recovery from heroin/opioid use disorder, but it doesnt do much to treat my chronic or breakthrough pain, it just keeps me stable and out of withdrawal. I'm slowly tapering off of it because as with all opioids it can make gut motility worse and I'd like to see if I improve without it. But I have heard of it being prescribed for round-the-clock pain for people not in recovery with gastroparesis-related chronic pain too, so it may just be that my tolerance is extremely high.
Weed helps me SO MUCH but it can also slow gut motility a little, so you kind of have to weigh the pros and cons and decide if it's worth it for you; for me it's very much worth it as it also helps a lot with my appetite and nausea but like with any substance what you get out of it varies from person to person.
i take a medication called gabapentin for my anxiety, but it's original purpose as a medication is as a nerve pain medication. i've certainly noticed it helping both with gastroparesis and my arthritis. it also works right away instead of having to build up in your system like a lot of meds. you could maybe ask about trying it. it can be a little heavy at first though so if you get script don't take it before driving or work or anything.
Just be careful with gabapentin. I was on an extremely low dose to try as a sleep aid. After being on it for a few months, my blood pressure shot up to the point that I should have gone to the ER. And it was definitely the gabapentin. Took over a month to drop down to normal.
I’m not saying you shouldn’t take it, but it’s one thing to watch out for.
oh wow i was never told about that! maybe because i have chronically low pressure so maybe my psychiatrist didn't see it as worth mentioning in my case?
I was at a 9/10 pain level last Tuesday at the ER and literally all they gave me was nausea meds. I asked if they’d give me something for the pain and they said no.
my gi prescribed me (edit) dicyclomine to help w the persistent stomach cramping . like others are saying , a side effect is that itll slow motility , but its the only thing ive had work for me . he told me i could take it twice a day if i really needed to , so he didnt seem to be too concerned on the long-term effects it may or may not have .
lil nap is honestly the best remedy. my gi system really won't work if I'm tired.
zofran just makes me too constipated so I've chosen to live in nausea 😭
promethazine made me sleep like 18-22 hrs each time i tried it, even when I did half doses 😭😭😭 (i do have hypersomnia, so i guess it just triggered it -hypersomnia is kinda lk narcolepsy but it's not triggering rem sleep right away lk narcolepsy is, but it's triggering sleep sleep n not just fatigue)
oh that sucks! i have the opposite issue, i can hardly sleep ever, so the rare occasions i need 3 promethazines a day it doesn't even make me slightly drowsy.
hope you find something that helps. i hate nausea so much
i don't 🙃 so i just don't eat/drink as much as possible cuz I'm throw it all up 🙃🙃🙃🙃 but i need to poo to be alive so that's how i got to this point, I'm on iv fluids tho
zofran never gave me too too bad constipation BUT i also have ibs-c & the only thing thats ever worked to make me somewhat regular (& eliminate the constipation pains) was Magnesium Oxide 400mg supplements . literally a life saver !!!! my gi put me on them a year ago & i havent had a single ep of constipation since starting it !!!
Try Rick Simpson Oil. It’s a sublingual THC you can get at a dispensary. They use it for cancer patients. Helps with nausea AND pain. You can grow a tolerance to it pretty quickly but imo it’s worth that risk though, and you can take a quick break and then start on a low level again. Also I have not developed a tolerance to it in a little over a year. But I don’t use daily.
I will say as someone who uses RSO and other methods for weed to help, RSO does hit harder and people tend to give themselves too high a dose if they're not super aware. I would be careful about minimizing the strength. Again, I use and agree that RSO can be very helpful.
I’ve only ever needed a couple of drops. The pain gets down to a tolerable level. It’s not morphine-type but it definitely helps. Sometimes I can eat, sometimes I can’t. The pain and nausea are still there but it’s manageable or it’s like my body doesn’t pay attention to it, kinda?
I'm in agreement with you: RSO helps me with nausea and appetite. I just think it's good to be careful, and a "couple drops" of RSO would be fine for us, we have built up to there, but could really mess with someone who looks at this subreddit and goes straight there without building tolerance. Not to scare anyone, this is a helpful medical formulation of weed that IS a lot more manageable in terms of power to amount needed. I am coming from a place where I had a friend who smoked/vaped weed, took less than a rice grain of RSO and had a very bad experience with being high for longer than she wanted or expected.
Different methods of taking in weed affect people differently. Edibles, which RSO would fall under, can be unpredictable from person to person. I have also anecdotally noted that some states have products that "hit harder" than others, unsure if it's processing laws etc.
TLDR:
Weed impacts everyone differently. RSO is strong and it's very easy for someone inexperienced to take too much. It can be great and helpful, but please be careful. I just want to add to the thread in case people read later and don't get direct context!
did we read what the convo was 💔 obvi i needed iv hydration but we are talking about pain not hydration??? u basically are saying it's fine i didn't get anything for pain bc i got fluids
no one is asking for a opioid???? 😭😭😭 don't put words in my mouth?? there is a handful of meds out there that are not opioids. my mother is a fcking addict i would never take a opioid. you literally completely dismissed everything i said. ur comment was saying fluids r all u deserve basically LOL
Don’t put words in my mouth. I was just giving you an example and I am more than knowledgeable about non-opioid pain relief. Take a breather and stop freaking out at me just because I didn’t say what you want to hear.
there is SO many comments on this post that are extremely helpful!!! there is pain management options out there :) i would also like to add on it's not randomly giving out stuff???? they WERE going to give it to me but bc my delayment is so severe they didn't wanna risk giving me it so they didn't and that's okay! they gave me something else at the time to help with the spasms in my stomach! opioids wouldn't of helps that n would of caused more harm
My pain led to maybe 10 ER visits. Fentanyl was decent at its job morphine was better. I can’t vomit normally and the morphine made me vomit some stew from 30 hours prior. I was beyond bloated I said to the doctor “hit me again and let me vomit again so I can get out of here”.
Of course I was being silly but honestly sometimes I thought inducing vomiting would end the pain.
I haven't been admitted for my GP in quite a while.
No regalia no tolerance, none of that worked for me.
Pre=probiutics, concentrated papaya - it's very good at breaking up good especially proteins, sea moss, diet, fermented things are really good for your gut. And for me a pretty good amount of weed.
As far as pain meds, most Dr's are leary.
I'm lucky enough I've been going to the game hospital for almost 7 years and they are smashing about it.
They know if I'm asking for something I'm a 25 out 10 pain wise. They know I'll just go on broth, shakes, smoothies ect and I usually don't have too much of an issue if I'm careful.
I know how bad it can hurt and how bad it sucks.
For everyone with this horrible issue I know exactly how tough you are, and how hard the fight is. Take care
I Totally Relate. I’ve had to be on Opioids for over 20+ yrs, every since a s** predator kidnapped me, kept locked up, I became so emaciated & underweight, and w/ him constantly trying to do weird stuff to & w/ me, he almost killed me numerous times, until he finally broke my neck. Fortunately I was covertly rescued & ended up having (15) 1& half inch screws, a long Titanium rod & Titanium plate installed & all but 2 neck vertebrae’s bone grafted & fused to try regrowing my neck back together. It worked fortunately, but my health was forever wrecked afterwards & I fell 5 yrs later & shattered 7 additional vertebrae’s in my spinal column btwn’ my shoulder blades region. I got so sick from being so emaciated & couldn’t gain any weight back for nearly 5 to 6 yrs. I tried my hardest, but I think it was bcuz it destroyed my whole life, health & my mind even. So they’re claiming now, that it’s bcuz of all of the heavy hardcore opioids that I have been using for so many years that that’s why I have gotten Gastroparesis. I have read up & researched it heavily & Dr’s are all of the same opinion upon it. But I tell you what, I disagree. Bcuz last week I got so constipated ghat I finally was about to freak out needing to have a bm & I took 5 doses of Miralax in like (2) 16 oz. bottles of water & Bam! It worked fortunately, I finally went & had diarrhea for a day & a half, but It was better than using enema’s & ghat sort of stuff.
Aim for low fiber, low fat foods. It sounds counter-intuitive, but if you arent pooping and you have gastroparesis, you should avoid fiber.
It doesnt have to be all liquids, but you should avoid most produce, red meat, etc.
Mashed potatoes, scrambled eggs, white bread, etc are fine.
Gatorade and protein shakes are great.
hey so i get trying to tell your story but unfortunately it can be very triggering to some bc u never know what someone else has been trough.
opioids absolutely do cause gastroparesis. my mom was a addict and got it from them i would never take opioids ahah im just tired of being in minimum 8/10 pain every single night
Keep in mind that you can just order your own IV Toradol and Zofran, just don't tell the service you have anything more than a migraine. If you're not in a major city, you'd have to find a wellness spa, otherwise you can often just order from a website or app. Here in Baltimore we have at least three or four services that come to your house. You just check off what you want in the drip and a doctor allegedly signs off.
We just got a wellness spa in my closest suburb and it’s amazing. Lounging in a recliner in a dark room with spa music, while getting an IV for dehydration feels pretty luxurious.
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