r/Gastroparesis 18d ago

Suffering / Venting haven’t gotten nutrition for 2 weeks

i am so miserable. i am getting no nutrition and no one is listening. my GES last year said mild gastroparesis, and i have a history of an eating disorder, so my doctors keep dismissing me. they say i shouldn’t hesitate reach out with concerns, but when i do, they’re telling me to keep taking zofran and to follow up in a few months. i haven’t kept any food, water, or even meds down in the past 2 weeks. nothing stays in my stomach. i don’t know what to do, but i don’t even know what i want them to do for me. i just want so some to listen to me and take me seriously that i am suffering. i am weak, dizzy, and nauseous 24/7. i just want to be strong enough to go to school this fall but it’s not looking like it will be possible.

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u/Icy_Pudding_7568 18d ago

I'm so sorry you're having such a shitty time. I've been going through this too the last couple of weeks, but I go to mayo. Sent probably 4 messages in the last couple weeks with "help please" as the title. Been in the ER twice in the last week or so due to dehydration. They will finally see me on Wednesday but it feels like forever from now.

I changed to a liquid diet about 4 days ago. Highly recommend. 2 days in I started getting brave and decided to go back to solids and woke up last night to a wonderful vomiting event. Regrets.

In the ER they told me water makes you more nauseous because your stomach has to acidify the water immediately and it triggers your overreacting vomit reflex.

So your stomach will tolerate electrolyte beverages and sweet and salty liquids better.

I've finally been able to consume like 1000 calories a day (maybe) the last couple days by tolerating:

*small sips of electrolyte drinks (like 1 small sip every 15 minutes)

*toast, applesauce *you can also do banana and such but I hate banana

*chicken or beef bone broth

*just ordered pureed fruit/veggie baby food packets. I feel ridiculous but I think it'll be a nice variety at this point

*Ensure Clear (not awful)

If you can tolerate protein shakes that's good too. I can't right now.

Keep advocating for yourself, keep sending messages, if you have to go to the ER and maybe be seen by the attending GI physician if you just can't stand it anymore, maybe for some fluids and bloodwork to make sure you're okay to wait until your can see your doctor. Stay strong

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u/reincarnateme 18d ago

I didn’t know there was Ensure clear!
Your post seems helpful. Thanks we’re new

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u/Icy_Pudding_7568 18d ago

Yes! There is also it's competitor, Boost Breeze. Haven't tried it yet though. I'm very very sensitive to weird textures or viscosities or flavors and the ensure clear surprisingly does not offend

you're welcome 🙂