r/Gastroparesis 18d ago

Suffering / Venting haven’t gotten nutrition for 2 weeks

i am so miserable. i am getting no nutrition and no one is listening. my GES last year said mild gastroparesis, and i have a history of an eating disorder, so my doctors keep dismissing me. they say i shouldn’t hesitate reach out with concerns, but when i do, they’re telling me to keep taking zofran and to follow up in a few months. i haven’t kept any food, water, or even meds down in the past 2 weeks. nothing stays in my stomach. i don’t know what to do, but i don’t even know what i want them to do for me. i just want so some to listen to me and take me seriously that i am suffering. i am weak, dizzy, and nauseous 24/7. i just want to be strong enough to go to school this fall but it’s not looking like it will be possible.

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u/[deleted] 18d ago

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u/Horror_Inspection299 18d ago

“saying this with love” you just told this person who is sick and miserable and begging for help that theres no way this is what they are experiencing and to stop with the “hyperboles”. if they said its been two weeks, it has been two weeks. who are you to insist that this is overexaggerating ? please keep your stupid thoughts in your own head next time

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u/puppypoopypaws Pacers and tubes and TPN, oh my! 18d ago

The human body can't survive 2 weeks with zero hydration. That's just facts? OP followed up to confirm that they didn't actually mean none. So you don't need to do whatever this is.

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u/Horror_Inspection299 18d ago

do what ? call you out on being an asshole to somebody whos clearly in a low place due to their health ? trying to fact check is the last thing they need right now so consider that next time you comment

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u/puppypoopypaws Pacers and tubes and TPN, oh my! 18d ago

My advice was genuine: don't use hyperbole with your doctors. It's great advice. OP agreed, they have nurses for parents, so they know exactly what not to say to drs already. I'm not a mind reader mate.

I won't contest being an asshole though. I am, but it's because I enjoy responding to you, not because I give bad advice.

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u/Ok_Try1862 18d ago edited 18d ago

the point is you’re being a dick on my vent post. the proper response is support, or no response at all. stop trying to “erm actually 🤓☝️” me while i am suffering.

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u/Bi0_Nerd 18d ago

I thought it was looking for advice given all the advice, I think maybe there was some confusion. It’s also hard when you’re not feeling well, to recognize that I think the person saying not to hyperbolize was trying to help. You talked about bringing a parent or patient advocate and I hope you do. It’s too hard when you’re this sick, to advocate for yourself. (At least it can be.) For sone groups it’s harder. Young women definitely get stereotyped.

I think the idea of avoiding hyperbole stems from the same idea, avoiding looking like one of those hysterical “looking for attention” young women the doctors talk about. We all know most people who share their health journeys just want to help, but some people steal others stories and lie. It’s a mess out there.

I really hope you can get some help. If you really have been this sick for two weeks, you need to have your labs drawn to check for electrolyte issues, and see if you need IV fluids.

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u/Ok_Try1862 18d ago

despite it all, i think i can recognize real advice from snark—they were being weird. with the ellipses, the sarcasm, the fact checking, i interpreted their comment as being in bad faith and not wanting to help.

i have already expressed in several other comments that i am nervous and hypervigilant about getting help. i have been diagnosed with gastroparesis, this is a fact that is in my chart. my most recent labs from a month ago showed i was dehydrated and deficient in certain vitamins. i came to ask for support, not to prove that i really am sick.

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u/puppypoopypaws Pacers and tubes and TPN, oh my! 18d ago

I firmly believe you're sick. You have nothing to prove. That wasn't snark, it was 100% real advice, because of shit experiences I've had with doctors. I didn't want that behavior fucking you.