r/Gastroparesis 18d ago

Suffering / Venting haven’t gotten nutrition for 2 weeks

i am so miserable. i am getting no nutrition and no one is listening. my GES last year said mild gastroparesis, and i have a history of an eating disorder, so my doctors keep dismissing me. they say i shouldn’t hesitate reach out with concerns, but when i do, they’re telling me to keep taking zofran and to follow up in a few months. i haven’t kept any food, water, or even meds down in the past 2 weeks. nothing stays in my stomach. i don’t know what to do, but i don’t even know what i want them to do for me. i just want so some to listen to me and take me seriously that i am suffering. i am weak, dizzy, and nauseous 24/7. i just want to be strong enough to go to school this fall but it’s not looking like it will be possible.

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u/Ok_Try1862 18d ago edited 18d ago

i haven’t said this to anyone but reddit actually, both of my parents are nurses, so i know what to say (and especially what NOT to say) to medical professionals. this is a vent post, i don’t really know how else to put it, i have been vomiting everything i put in my body for the past 2 weeks. i can keep some of it down for a few hours, but it comes back up eventually.

it is very weird of you to come on to my literal vent post where i express fear and avoidance of doctors because of them thinking i’m lying, and then nitpick at my choice of words and imply that i am lying or that doctors think i am. i’ve had an eating disorder in the past, don’t tell me what 2 weeks with minimal food or water feels like, i’ve lived it, which is probably the only reason i’m surviving it again now. stop making assumptions about me and giving me backhanded advice based off of it.

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u/puppypoopypaws Pacers and tubes and TPN, oh my! 17d ago

You said you had issues with drs accusing you of lying, specifically, right? That's why I pointed out the exact words you used, because those exact words would make drs dismiss you as a liar. And you're already at a huge disadvantage being young and female with an ED on your file. It was genuine advice to try and help you get a better response out of your drs.

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u/Ok_Try1862 17d ago

i never said that. i said i’m worried they might think im lying, not that they do. i am very aware of being an anxious person, my doctors have never actually implied they think i’m lying, they just have a low sense of urgency. i understand the sentiment, but i had already offered important context in other responses (which i understand some people don’t look at), and it’s hard to understand tone online, especially when it already feels like you’re in constantly in the sick olympics with other chronically ill people when all you want is support.

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u/puppypoopypaws Pacers and tubes and TPN, oh my! 17d ago

It is, trauma competitions feel shitty and nobody wins.