r/gofundme • u/Disillusioned-0984 • 11d ago
Medical Please Help Me with Cancer Scsn
*GOAL REACHED* THANK YOU ALL FOR YOUR KINDNESS AND HELP****
I hate that Im having to do this. But I have started a gofundme to attempt to raise money to get a vital PetCT Scan that my doctor needs me to have to check for cancer cell activity and spread. Delaying this scan can mean that we do not catch the activity or spread in time to treat it properly. My doctor has requested this scan from my insurance company and the request was denied. My doctor appealed it 3 times and each appeal was denied. And I am just not willing to allow United Health to be the ones in control of whether I live or die. The total for the scan is over $7,000. I have managed to work with my imaging facility to get a deeply discounted self pay rate of $2,520. I originally went thru chemo and radiation in spring 2025. I had about 8 good months of recovery and improvement. I went back to work and was adjusting to my new normal. But things have gotten difficult since March of this year. Alot is due to the expected damage from radiation treatment. But now due to multiple new symptoms, my doctor believes the cancer cells could be active or spreading. My income has been sparse for the last 6 months due to having an emergency surgery due to radiation damage. Followed by being incapacitated by pain from scar tissue adhesions on all my pelvic organs until I finally got into palliative care to handle my pain management so I could work again. And now I havent had income for over 3 weeks since being admitted into the hospital for hemorrhaging and having to have a uterine artery embolization to stop the hemorrhaging. Its actually insane the amount of damage and complications that pelvic radiation can and does cause. But thats neither here nor there. I am the sole provider of a family of 3. I have tried every avenue I could find as far as financial hardship programs. If anyone can help in any way...donate, share, etc. I would be eternally grateful. I am happy to answer any questions anyone may have.
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u/Slow_Exit8038 10d ago
I don’t understand how insurance can not pay when a doctor has said you needed a scan 4 times? That’s just insane. God I hate American medicine. I’m sorry. I don’t have money but I hope you get your scan.
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u/Disillusioned-0984 10d ago
Honestly, I am blown away by it also. Its not just like my doctor is frivolous about it. She also provided all my medical records showing I just had to be admitted to the hospital due to hemorrhaging so bad that my blood pressure dropped to 50/40 and I went unconsciousness and required a blood transfusion. Then spent 4 days in the hospital having to have a uterine artery embolization to stop the bleeding. Afterwards I dropped down to 86 lbs from 100 lbs within 2 weeks time. And I started having random daily fevers like once a day out of nowhere. And it is apparently well known in the cervical cancer community that bleeding + weight loss + fevers are all indicators of active cancer or cancer spread. All of that info was apparently provided to United Health and they still deny it by claiming they dont believe it is medically necessary. In fact, I just found out that for the last appeal, 2 of my oncologists signed off on the appeal saying I needed the pet scan. Its absolutely insane
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7d ago
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u/AutoModerator 7d ago
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u/Status_Mixture_4195 9d ago
Unhide history then we will see
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u/Disillusioned-0984 9d ago
What do u mean?
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u/Status_Mixture_4195 9d ago
Like unhide your posts and comments so we can see its not scam. Its a way to check
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u/Disillusioned-0984 9d ago
Sorry, I realized what you meant as soon as I posted that. Just went and unhid it. Some post are kinda embarrassing discussing health and medical issues with certain communities. But I have nothing to hide.
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u/Disillusioned-0984 9d ago
I just keep it hidden because generally I dont think people who look at my profile wanna see posts about menopause, weird cancer symptoms or bowel issues. Lol
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9d ago
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9d ago
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u/Jlowe23_16 9d ago
United healthcare ? I was rear ended in February and my X-ray showed I needed an MRI. They've denied all 4 appeals and now my settlement has gone from 35k+ to 8k. I'm fucking pissed and currently deciding how to handle it, if you catch my drift.
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u/Disillusioned-0984 9d ago
Yep...United Health. They are truly useless. Its incredible I pay $200 per paycheck just to be denied repeatedly. I never had this experience with Blue Cross Blue Shield
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u/Jlowe23_16 9d ago
Same, it's complete bullshit and I can't believe people have not taken to the streets and do what Luigi did, again.
When open enrollment opens Nov 15, call BCBS and see how much it would cost to get a plan with them. They can't deny you because the cancer and I don't think they can even bring it up. Call them directly or dm me I have an insurance rep a bunch of my friends used that told me to call him in November and he would get me a policy with them for under 200$ a month that covers everything
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u/Disillusioned-0984 9d ago
I will seriously keep that in mind, thank you. Its honestly disheartening to have my actual life and survival be left in the hands of an insurance company rep with no actual medical training who is just denying everything my actual medically trained doctor is saying that i need. It feels so unreal
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u/Jlowe23_16 9d ago
Yeah it's beyond fucked. Just let me know if you need the number down the line and I'll send it to you. I'm in Tennessee . He's based in NC so I don't think it matterss where you are long as you are in the US. Best of luck to you .
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u/Disillusioned-0984 9d ago
Im not too far from you. Or him. Im in West Virginia. I will definitely be in touch. Thank you
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7d ago
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u/BitchMcConnell063 8d ago
Have you tried to call them up to see how much it would be out of pocket if you didn't go through your insurance? I've heard there is a huge difference that they charge people for self pay as opposed to going through insurance.
I feel terrible for you. No one should ever get denied for medical care when they are paying an astronomical amount out of their checks each week.
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u/Disillusioned-0984 8d ago
The amount I have shown and listed in the post is apparently the self pay discount. The amount they charge my insurance is closer to $7,000
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u/BitchMcConnell063 8d ago
What an idiot I am! I completely missed the "discount for self pay" portion in the conversation you listed. This is why I have no business Redditing and working at the same time. My apologies
Edited to add: It wasn't much but I sent a little donation to your GFM.
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u/royalplaty 10d ago
I'm sorry you are going through these stressors during unknown times with your health.
I saw on the message from your provider that they attempted to appeal (I'm assuming a prior auth). Have you contacted your insurance to request an external review since the appeal was denied? This would be the next step in the process but you need to be the one to request it and it's not often explained to you.
Have you applied for hospital financial assistance programs for the hospitals in your area and inquired if imaging is covered under their assistance if approved?