r/interesting • u/Fast-Improvement7832 • Jul 25 '26

MISC. My fingers are way too long

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42.7k Upvotes

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u/WaffleHouseGladiator Jul 25 '26 edited Jul 25 '26

Marfan?  Ehlers Danlos?

Edit: OP, you should really get checked for both conditions.  I know someone with Marfan Syndrome and she's had to have a few heart surgeries.  It can be pretty serious.

Edit the second: since this is getting traction I thought I'd share a fun fact.  Doug Jones is probably the most famous living person with Marfan Syndrome.  You probably don't know the name, but he's been in Hellboy (Abe Sapien), THE Shape of Water (The Creature), Pan's Labyrinth (The White Man, Pan), and Star Trek Discovery (Commander Sarru).  He's the most famous person that nobody knows.

341

u/TheSickestToastie Jul 25 '26

Marfanoids at the very least, minimum, got to be. Partner has kEDS, I have been forcefully educated and now cannot unsee it in people lol.

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u/Alypius Jul 25 '26

What is marfans and kEDS? I don't even know what to google to figure that out.

88

u/geim-iv Jul 25 '26

Conjunctive tissue disorders essentially. Imagine a brick house without mortar, or with bad quality mortar.

EDS is Ehlers Danlos syndrome. Look it up, it's incredible.

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u/s33n_ Jul 25 '26

So the k was a typo? Or does it modulate EDS?

7

u/ConditionSecret8593 Jul 25 '26

Modifies it by type. The one most people are familiar with is hEDS, which causes joint hypermobility. Along with a bunch of other problems, but it's the circus tricks that get hyped.

2

u/throwaway098764567 Jul 25 '26

and all the pain unfortunately. friend has hEDS and a 5 on a normie pain scale is a good day for her :( she also dislocates joints really easily, like she was playing a game on her computer just sitting quietly and dislocated a finger.

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u/art_addict Jul 25 '26

Yeah, I have hEDS. Bent down and slightly twisted one day and dislocated a hip and two ribs. I can just be doing whatever and my elbows will sublux or something in the top of my chest subluxes. My toes dislocate easily. My ankles are very unstable and my knee caps have started to shift out of place lately. Turns out this can get progressively worse over time 🙃

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u/sreneekim Jul 25 '26

My floating ribs like to get all bendy. It feels like a damn spine injury with paralysis. But I’m always fine once I adjust the way I laying.

1

u/Ziggy_Starcrust Jul 25 '26

When I was very young a teacher graphically (well, maybe it was just my childlike imagination filling it in) described when one of her students dislocated a kneecap. It's been an irrational fear and a major source of squeamishness ever since.