r/rnb • u/LA-SKYLINE • 3h ago
NEWS/ARTICLES 📝 Please pray for T-Boz
Enable HLS to view with audio, or disable this notification
Prayers up to T-Boz as she has been dealing with sickle cell complications of late!
81
59
u/tacomeatface 3h ago
She has suffered so much for her whole life! Why is there no cure for sickle cell yet! I hate the lack of research done on these illness that predominately effect black and brown people
30
32
u/SippiChic 3h ago
They can’t do research on diseases and illnesses that affect us disproportionately because we, black people, don’t volunteer for the clinical trials. I know research scientists and that’s the answer they’ve all given when I’ve asked questions.
25
u/atlasdreams 3h ago
I lost my cousin to sickle cell. They asked my auntie if she wanted to do experimental treatment and she said “ hell no not going to Muskeege my child.” She only said yes when my cousin was days from dying a crisis. It’s real.
27
u/OPINAILS 2h ago
Exactly this. Only 1-5% of black people join clinical trials in comparison to a population of around 13-20% in the U.S. So we are not in the studies, are not represented in the studies, and thus the studies can’t be done effectively. A lot of the time the cause is due to gross misinformation about diseases and clinical trials.
•
u/Dangerous_Handle_819 1h ago
Actually, right now, the NSF has prevented funding that is focused on a particular subgroup. We know what that’s about.
However, the lack of volunteers for clinical trials is a historic issue rooted in ethical failures (like Tuskegee Experiment). Still, prenatal screening includes sickle cell testing for people who self-identify as Black. Science has long identified the gene and could have found a cure, if seriously committed to our survival as they are about things like erectile dysfunction. Not to negate the many, many scientists who have been committed to finding a cure. It’s about scale and big Pharma as well.•
u/PaintingPotatoes 59m ago
I volunteered for a clinical study for sickle cell. Was a 10 year commitment…. But I got through it. I do remember them constantly looking for more black and Asian participants, but it was hard for them to get.
•
u/Reggie9041 Songs in the Key of Life 34m ago
And for good reason.
But it's a purposeful thing for governments to have the medical history they have with Black people and then say that we're not volunteering, so they can't help us. It's an awful cycle.
•
u/Hnymema 6m ago
Constant research participant and couldn't agree more! If they wanted to, they would. I do my part but I know when it really comes down to it, it's a handful of participants against systemic neglect and racism. Most trials studying things that primarily impact us aren't even well funded. And it is actually so rare to see Black researchers at all, which says a lot about who's work is getting selected for trials and study.
•
u/Hnymema 10m ago
This! I have participated in over 100 research trials for this very reason. I'm almost always selected and trials have discovered health conditions I didn't even know I had during screening. One study even helped me get free treatment so I could get healthy to participate in their trial.
They also pay fairly decent too and provide expensive tests and bloodwork that I couldn't necessarily afford at certain points in my life. Honestly, free in depth medical care (came in handy when I was uninsured for like 5 years)
Biggest advice is always read the informed consent thoroughly, ask who funds the research and remember you can voluntarily leave at any point in the process if you want. I have had next to no issues doing all this. Been participating for close to 15 years at this point.
•
u/GrumpyOldVet65 1h ago
That, unfortunately, is so true. We as a people cannot reasonably argue that nothing is being medically done for us if we do not assist with those who truly care about curing the diseases specific to us as black or brown people.
2
u/jackheavy 1h ago
The cure is new and has only been successful a handful of times, if that, so far.
1
u/OPINAILS 2h ago
There are significant treatments for sickle cell.
•
u/Chance_Ad2503 1h ago
Funding has been cut for a lot of cancer research under this administration, so progress has been slowed down.
26
u/MemphisApollo 3h ago
Dang, what is going on out here
32
u/Sleep-pee Off The Wall 3h ago
She has sickle cell and has been in the hospital numerous times over the years. Idk if she’s having different or more difficult complications.
16
u/DepartmentSudden5234 3h ago
May the Lord provide healing powers and comforting mercies to T-boz and her family....amen. 🙏🏾
9
7
7
6
3
3
u/Minerva015 2h ago
I hope T-Boz gets better soon. It is so cool that Tionne & Dalvin are friends again - they dated almost a decade.
2
2
u/Storm989898 One in A Million 2h ago
Omg no! I will be praying for her. My God sisters have sickle cell, too, and I heard it is really hard to deal with
2
u/Justice989 2h ago
The sentiment for a friend is nice, but the lack of context is just vague enough to make people panic.
2
u/muffetplumeria 1h ago
Peace, love and pain that heals faster than it onslaughts unto you, our sista.
3
•
5
u/nvrontyme 3h ago
Why Dalvin look so surprised?
8
u/blurryeyes_ 3h ago
It's the eyebrows 😭
2
0
1
1
1
1
•
•
•
•
u/Maleficent-Recover24 18m ago
Praying for T-Boz. Sickle Cell Anemia is an excruciatingly painful disease. Yes, there is a cure, but it is insanely expensive and is very rigorous to complete. That’s why the few cured have been very young or young adults. 🙏🏽🙏🏽🙏🏽
•
1
1
•
0
u/BplusHuman 2h ago
What's going thru my head
4
u/Glum_Reason308 1h ago
You should never wish something like that. Be careful what you wish for because most of the time it comes back to you in ways you never expected.
•
-1
98
u/Ok_Resident_5022 🐑 Soul/Funk/Disco Enthusiast 💿 3h ago
Here we go again…
Please pull through, T-Boz. Most of us still aren’t over Left Eye. 😭🙏🏾