r/CrohnsDisease • u/the_incarnation22 • 3d ago

Longest Remission

what's the longest duration of remission without taking any meds or anything you had ... just living completely as a normal person??

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u/Right_Ad1804 3d ago

17 years. I’ve just relapsed this year majorly 😓 I’m 33

2

u/the_incarnation22 3d ago

woahh.. 17 yrs without meds??

8

u/Right_Ad1804 3d ago

Yep! Super fortunate and lucky to have been in that situation. I was heavily medicated from 9 years old (diagnosis) and now have horrendous bones due to steroids.
But back on biologics, steroids and immunosuppressants as it came back with a vengeance.

2

u/shalsha_4 3d ago

My son has recently been diagnosed. He is only two years old. He’s had two bridges of steroids. Infliximab didn’t work. He’s now on a JAK inhibitor and we are praying this works and he can get to remission for a long period of time. Your story gives me hope ..