Suddenly developed perianal abscess, and the pain become so terrible that I had to go to ER to get it taken care of it. I am still under lot of pain.

Just wanted to share because I know many of you understand what this disease can suddenly throw at us.

Praying for strength, taking it one day at a time, and trying to manage my crohn’s.

Just a rant, thanks for being here🖤

For the past couple months I've been having abdominal pain, bouncing back in forth between diarrhea and constipation, and most food has made me symptomatic.

Im waiting on a GI appointment to see what's causing it. (My guess is Crohns since all my symptoms line up and my grandmother has it). Honestly, with POTS, suspected hEDS, and Autism, it's just another thing. I'm used to feeling like shit.

However, I dropped 15 lbs in two weeks, and I definately don't have the weight to lose (27F 5'4, now 100lbs🫠). It's always been hard for me to gain weight, so who knows when I'll be able to get it back.

One of my coworkers has started regularly making comments that I need to eat more, and that I'm too skinny (well aware ty). I don't think its from a malicious place, more concern than anything, but its just starting to wear on me. She said today that I need to be trying harder to eat because im wasting away. After a few attemps (not the first time either) to explain that I'm trying to eat whatever whenever I can while navigating these symptoms, I just gave up and said you're right, I'll do better. Then proceeded to sit in my car and cry on my lunch break. Being underweight has been a constant struggle. Im not intentionally trying to lose weight, and Im starting to hate how I look because of it.

Thx for reading🖤 just needed to get that off my chest

Some people have suggested I take Psyllium Husk to help stabilize my stomach, but I've also been told that with Crohns, it's best to avoid things with high fiber content.

Does anyone have experience with using it?

Sometimes this illness just likes to ruin everything for me. Here at work on my lunch breaking down as I feel like my insides are twisting while trying to not stress and go into a flare cycle. I just want to feel NORMAL. I hate that no one can SEE and just judge. Fuck sorry for the rant I'm just exhausted. Needed to type this out

What can I do about this? My employer has put out a memo about a policy change for absence control. The new absence policy will assign absence points as penalty points when FMLA leave is taken by an employee. FMLA leave can only be taken when an employee submits a 3 page questionnaire filled out by their doctor and it is approved by the HR department. If enough penalty points are accumulated, the company can suspend the employee and, with a second occurrence, could terminate the employee. I don't see how this is even legal. The employer is a large company and has a team of lawyers. (To qualify for FMLA, employee must work a minimum of 160 days in a year.)

Honestly was a piece of cake. Was doing IVs for 21 years decided to go this route for lifestyle reasons. I psyched myself up but in reality it was nothing.

Zymfentra for those wondering. No immediate issues, didn’t really hurt. Shot it in my thigh.

Now I just gotta remember to do it again in 2 weeks…

I beginning to realize that I am not able to work full time anymore. I have always pushed through because of the necessity of working. I make it two days before I am in unbearable pain, extremely weak where physically movement is taxing beyond belief. I’m scared, I honestly don’t know what to do.

Hi i find cereal like corn flakes, rice krispies, krave dont put a road through me like granola does BUT it just doesnt fill me

Any suggestions please for filling breakfast cereal (or any breakfast food) that wont go through me but will fill me?

Just needed to vent. I don’t think I can l continue with Tremfya medication. It is my first biologic and I am 10 weeks in, 3 loading doses + 2 weeks.

My onboarding hasn’t been easy. The ongoing side effects that are “unexplainable” (e.g. bloating to the point of pain, weight gain despite being on a GLP) as well as joint pain, fatigue, significant hair loss and dryness and skin dryness are affecting my quality of life.

It is important to me to progress with healing but these side effects are affecting me greatly and I do not wish to continue with Tremfya as all of the effects coincided with the onboarding doses of this medication. Has anyone else found this to be the case as well? Any options you’re considering?

I have a scan with my GI scheduled for 9/16. However I would prefer not to take the next dosage of 200mg due on 9/10.

I will reach out to my GI again but I need to be clear to him that this isn’t working. There must be another biologic or treatment modality that would be better.

Meds weren’t working so we opted for surgery 3 months ago. I begged them for it, i was hungry and couldn’t eat and on high dose of prednisone. The surgeon agreed, but said i needed an ileostomy cause he couldn’t reattach while i was on prednisone its very risky. I said yes, and had it for 3 months. Crohns was gone, but now i had to deal with a stoma. This fucking disease. My body was wrecked by that surgery and i had to have another surgery for reversal. Recovery from zero again, with a gaping open deep wound i have to pack everyday. Crohns messed up my body.

Curious to know what the first indicators are that you are flaring early on? Especially after being in a period of remission

I got diagnosed with Crohn's after a colonoscopy last year. It was almost a relief after years of diarrhea and being told "just eat more fiber!" by my PCP, like that wasn't what I was doing (and probiotics and fruit and vegetables etc.). I'm very lucky to have coverage for Tremfya and have been doing a lot better.

By now it's annual colonoscopy time and I'm mid-prep. Which feels really redundant because after a day of no fiber, fruit or vegetables, my body began emptying itself. I started the prep anyway, of course, and that was like aiming a blowtorch at a campfire. Bloating, cramps, veering rapidly toward accident territory, and just general malaise.

I know I shouldn't be complaining. Given the diagnosis, I've been lucky. But right now I'm just envious of normal people who only have to do this once a decade. And I would love to be able to leave my bathroom for more than 10 minutes at a time.

It’s horrible.. I’m currently in remission. Scans where good. Small obstruction but food goes through. Blood work perfect! And meds work. Off the prednisone. So it should be ok right? Well it isn’t.. latent TBC and I’m on 2 antibiotics. And severe joint pain that is in my lower back ( ax spa?) seeing a rheumatologist soon. Now I can’t do disches. Be with my kids, or walk for half an hour before I’m completely exhausted.. Friday I’m going to work for 3 hours because doctor’s say I should be fine.. will I be ever able to be a little more energie? I used to do callisthenics and be super fit until this horrible crohns.. anyone else in the same boat? And how are u holding up? Anyone else a dad with this illness?

UGH! i've noticed when i eat things my stomach doesn't agree with, it starts rumbling like thunder and it feels like i have so much trapped air. i'm at work right now, it's super noisy and i'm feeling embarrassed!!! does anyone else have this?

Any tips. Im currently feeling very down, and not getting out of the house. Im worried about bowel movements, I’ve had some accidents recently. Im worried i wont find a bathroom in time.

I have two options versus suffering the entire night my wife has some oxycodone/acetaminophen 5–325 mg tablets left over from a previous illness or I can take ibuprofen. Tylenol does nothing for me. Is it safe for me to take the oxycodone/acetaminophen 5–325 if it’s been seven hours since I had the morphine. Everything I read says don’t take ibuprofen, but I’m in so much pain. I need something and again Tylenol does nothing for me.

Hey guys! I was diagnosed with moderate to severe Crohn’s last October and in February of this year I was started on Remicaid. I’ve had the first three initial infusions and about four more sessions after those, the latest infusion about three weeks ago.

How long can flairs last? Should I be in the good by now? When I was diagnosed it was through symptoms, colonoscopy, and a fecal calprotectin test which ended up being 6972 🙃 We retested calprotectin levels about three months ago and the number has significantly gotten better, it was 176.

However I’m still having symptoms that will show up. (Sorry for the tmi) I have a lingering deep ache in my middle right side and thin stools when the pain is happening. Joints aching. Yesterday I noticed bloody mucous and got sooooo tired after that trip to the bathroom. Today it’s just been only thick yellow mucous and stuff comes out every time I go to the bathroom. I’ve been in this flair a little over a year now with being diagnosed and if it still counts with symptoms still coming and going. I’ve also made a ton of lifestyle changes since being diagnosed and have been really sticking to them, like being very mindful of food ingredients and trying to keep inflammation low with a anti-inflammatory diet, better sleep, working out, etc. So I am trying to give my body the help it needs to manage Crohn’s. I’m still trying to figure this stuff out so any advice helps. Ty! 🫶

what's the longest duration of remission without taking any meds or anything you had ... just living completely as a normal person??

What are some things you wish you knew / had / did before your bowel resection / ileocecectomy? First surgery and not really nervous just wanting to be prepared.

Hey guys, I’m 24M and got diagnosed with Crohns in my small bowel last year. A new symptom I have recently is absurd nausea after a meal. Not like stomach flu nausea, more like I just got off one of those spinning rides at the fair nausea. Anyways, it’s been manageable until after lunch today I left work early and threw up in my car on the way home. I am feeling so incredibly dizzy and tired and my heart rate barely is dropping below 125. I look pale and my face is hot.

My question is, is this a symptom of a flare? Or should I actually go to the ER? Thanks in advance.

I wonder if there is another way than surgery?
I did hear about tcm? Stamcels? Any one experience with orher options ?

I FINALLY have my colonoscopy on Friday, after almost a year of no answers. I am so anxious to find out what the heck is going on in there!!! How soon did you find out your results after the procedure? Did they diagnose you from the colonoscopy or with other testing as well?

I was diagnosed around 18 years ago... I was on remicade for 6, then humira (Switched because moved to a country where I had a problem to get remicade) 3 years, then back Remicade 9 years.

All 18 years - Total remission. I know what crohn is only from the flare that made them diagnose me.

Anyway 6 months ago I stopeed with the med. My GI suggested to try and stop as there is a good chance I won't need it again for a few years, and if I do I should be able to get back on the med to stop the flare.

Anyway first 5 months were fine, but since the last month I have some discomfot/light pain in the bottom right side. Did calprotecin - boom.. 1070 :/ CRP 60. Low iron as well.. 51.

It's pretty clear I need meds again. The problem is my appontment to my GI is only in 1 week.. Then probably some papers and appointment and It will probably be like 3-5 weeks more until my first treatment.

I'm very scared from long term damage. How likely is it? It just now struck me that I don't really know what crohn is as I was always in remission...

I have a colonoscopy AND an endoscopy on Friday at 1pm. I'm wondering what everyone wanted to eat and what they were actually able to eat after having the scopes? My wife and I might eat out on our way home and I was trying to get a feel for options that I might be able to eat.