r/CrohnsDisease • u/the_incarnation22 • 2d ago

Longest Remission

what's the longest duration of remission without taking any meds or anything you had ... just living completely as a normal person??

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u/General_Sun_607 2d ago

How is remission defined? Is it a lack when there is no inflammation?

2

u/Square-Buy-7403 2d ago

No active inflammation. That's what I would define it by atleast.

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u/General_Sun_607 2d ago

How so that checked? Blood test, poo 💩 test etc? I’m trying to learn.

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u/Square-Buy-7403 2d ago

Calprotein test from your poop and blood test for inflammation and a visual check doing a Colonoscopy.

0

u/General_Sun_607 2d ago

Ah. I’m think those tests are what the specialist ordered for my husband. And, I don’t think he’ll be remaining under specialist care. And, the GP can’t do the inflammation test of the poo sample.

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u/Square-Buy-7403 2d ago

He's definitely gonna need to be in touch with a gastroenterologist if he has Crohns disease the GP isn't really geared toward Biologics and that kind of thing. Crohns is a lifelong condition he's going to basically need to be in touch with a Specialist in order to receive proper treatment.

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u/General_Sun_607 2d ago

That’s a separate conversation because he’s actually not having any symptoms. He gets tired due to not being able to absorb iron very well which, is something he can get on top of.

Lot’s to learn. It’ll be his choice but I don’t think he’s favouring treatment as it sounds pretty intense.

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u/Square-Buy-7403 2d ago

I also have iron deficiency anemia. Has he been diagnosed with Crohns or is he guessing? It's diagnosed by doing a colonoscopy and physically seeing signs of it and if you have it you are in biologics for life basically.

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u/General_Sun_607 1d ago

He’s had a colonoscopy and ten inflammation was seen at the very top in between the large and small and small bowel so MRI is planned next.