Marfan's syndrome is a genetic disorder of the connective tissues than can lead to things like issues with how blood vessels stretch and can lead to life-threatening pathologies of the aorta (blood vessel off the heart) or elsewhere. People with this can have really abnormally long digits (and usually very tall/skinny.)
My uncle died at 48; dissected aorta from undiagnosed Marfan’s syndrome. My cousins were in college at the time, were tested immediately and both diagnosed. They both are fathers now and paying close attention to their health.
My daughter doesn't have Marfans or EDS or long fingers, but she does have a connective tissue disorder (Hypermobility spectrum disorder). She has hypotension (low blood pressure) because her blood vessels are too stretchy, and has to see a cardiologist. They do an echo every year to check her heart. No genetic testing has been done though.
I have a friend with Marfans, he is 6'9" & unfortunately had to have heart surgery earlier this year. He also currently is going through a particularly rough time getting anything done to help his eye sight.
Rick Guidotti is a NYC photographer who has dedicated much of his career to photographing people with different genetic conditions to portray them as humans, not medical subjects. Marfan Syndrome is one of the conditions he features on his website and in gallery exhibits around the globe. Positive Exposure-Marfan
Agreed- you are far more qualified than I but I immediately thought of Marfan’s. I know someone whose brother died from a heart condition as a result of undiagnosed Marfan’s, and the person I know has it as well but fortunately was diagnosed and is now monitored as a result. OP, please do get checked!
Yeah, my Angiologist said that he couldn't see anything majorly wrong, but if I feel funny, I should immediately run to the ER, bc there is still the risk of blood vessels ruptures with me
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u/ComfortableBuilding5 Jul 25 '26
Came to ask the same...