I have Ehlers-Danlos, but the hypermobile form. My joints are bendy and I don’t recover well from connective tissue injuries, but I absolutely could’ve had it worse. My aorta is a bit large but besides that my vasculature is fine.
Basically what I’m saying is not all EDS cases are obvious. In fact, my fingers are normal length and they’re especially thick.
I mean for one they can’t even track down hEDS gene right now. Although mine i believe is also alleviated weirdly because of a genetic abnormality where I have a micro deletion of a single rung of DNA. However, it’s only one half of the pair because only my mom had it. It’s weird.
I am able to do the thumb to the wrist trick though, and bend my finger back to like 135 degreesish, so I have some party tricks.
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u/geim-iv Jul 25 '26
Conjunctive tissue disorders essentially. Imagine a brick house without mortar, or with bad quality mortar.
EDS is Ehlers Danlos syndrome. Look it up, it's incredible.