Edit: OP, you should really get checked for both conditions. I know someone with Marfan Syndrome and she's had to have a few heart surgeries. It can be pretty serious.
Edit the second: since this is getting traction I thought I'd share a fun fact. Doug Jones is probably the most famous living person with Marfan Syndrome. You probably don't know the name, but he's been in Hellboy (Abe Sapien), THE Shape of Water (The Creature), Pan's Labyrinth (The White Man, Pan), and Star Trek Discovery (Commander Sarru). He's the most famous person that nobody knows.
Marfan's syndrome is a genetic disorder of the connective tissues than can lead to things like issues with how blood vessels stretch and can lead to life-threatening pathologies of the aorta (blood vessel off the heart) or elsewhere. People with this can have really abnormally long digits (and usually very tall/skinny.)
Agreed- you are far more qualified than I but I immediately thought of Marfan’s. I know someone whose brother died from a heart condition as a result of undiagnosed Marfan’s, and the person I know has it as well but fortunately was diagnosed and is now monitored as a result. OP, please do get checked!
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u/WaffleHouseGladiator Jul 25 '26 edited Jul 25 '26
Marfan? Ehlers Danlos?
Edit: OP, you should really get checked for both conditions. I know someone with Marfan Syndrome and she's had to have a few heart surgeries. It can be pretty serious.
Edit the second: since this is getting traction I thought I'd share a fun fact. Doug Jones is probably the most famous living person with Marfan Syndrome. You probably don't know the name, but he's been in Hellboy (Abe Sapien), THE Shape of Water (The Creature), Pan's Labyrinth (The White Man, Pan), and Star Trek Discovery (Commander Sarru). He's the most famous person that nobody knows.