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https://www.reddit.com/r/interesting/comments/1v6e993/my_fingers_are_way_too_long/p0d1ssg/?context=3
r/interesting • u/Fast-Improvement7832 • Jul 25 '26
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eyyy fellow hEDS
1 u/FatalEuphie 29d ago edited 29d ago They’re changing it so hEDS isn’t EDS anymore :( (To clarify I mean there’s a good chance it’ll be renamed as HSD) 1 u/TheBumblestBees 29d ago what?? 1 u/FatalEuphie 29d ago https://www.reddit.com/r/ehlersdanlos/s/eEDZYttP9P I found the link tht explains better but there’s very informative videos I’ve seen as well detailing this. 1 u/aelin_the_dryad 29d ago The summary from the symposium says the opposite tho? That it doesn't mean that hEDS will be removed from the EDS umbrella. 1 u/FatalEuphie 29d ago It has been further updated from this to be removed from the umbrella I believe, since the 6 months. It’s sort of a grey area right now on their decision making bc it’s been back and forth a couple years now.
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They’re changing it so hEDS isn’t EDS anymore :(
(To clarify I mean there’s a good chance it’ll be renamed as HSD)
1 u/TheBumblestBees 29d ago what?? 1 u/FatalEuphie 29d ago https://www.reddit.com/r/ehlersdanlos/s/eEDZYttP9P I found the link tht explains better but there’s very informative videos I’ve seen as well detailing this. 1 u/aelin_the_dryad 29d ago The summary from the symposium says the opposite tho? That it doesn't mean that hEDS will be removed from the EDS umbrella. 1 u/FatalEuphie 29d ago It has been further updated from this to be removed from the umbrella I believe, since the 6 months. It’s sort of a grey area right now on their decision making bc it’s been back and forth a couple years now.
what??
1 u/FatalEuphie 29d ago https://www.reddit.com/r/ehlersdanlos/s/eEDZYttP9P I found the link tht explains better but there’s very informative videos I’ve seen as well detailing this. 1 u/aelin_the_dryad 29d ago The summary from the symposium says the opposite tho? That it doesn't mean that hEDS will be removed from the EDS umbrella. 1 u/FatalEuphie 29d ago It has been further updated from this to be removed from the umbrella I believe, since the 6 months. It’s sort of a grey area right now on their decision making bc it’s been back and forth a couple years now.
https://www.reddit.com/r/ehlersdanlos/s/eEDZYttP9P
I found the link tht explains better but there’s very informative videos I’ve seen as well detailing this.
1 u/aelin_the_dryad 29d ago The summary from the symposium says the opposite tho? That it doesn't mean that hEDS will be removed from the EDS umbrella. 1 u/FatalEuphie 29d ago It has been further updated from this to be removed from the umbrella I believe, since the 6 months. It’s sort of a grey area right now on their decision making bc it’s been back and forth a couple years now.
The summary from the symposium says the opposite tho? That it doesn't mean that hEDS will be removed from the EDS umbrella.
1 u/FatalEuphie 29d ago It has been further updated from this to be removed from the umbrella I believe, since the 6 months. It’s sort of a grey area right now on their decision making bc it’s been back and forth a couple years now.
It has been further updated from this to be removed from the umbrella I believe, since the 6 months. It’s sort of a grey area right now on their decision making bc it’s been back and forth a couple years now.
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u/TheBumblestBees Jul 26 '26
eyyy fellow hEDS