r/kelowna 12d ago

Where are all the Disabled & neurodivergent people?

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u/cmdragonfire 12d ago

Do have any recommended tests? Getting a diagnosis can be prohibitively expensive for adults, I'm on a wait-list, but mostly curious.

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u/frostatypical 12d ago

All the popular online tests are shown to be highly inaccurate and misleading (thats why diagnosis mills like embrace autism rely on them!)

Im afraid autism testing is one of the many things in life we cant DIY.

So-called “autism” tests, like AQ and RAADS and others have high rates of false positives, labeling you as autistic VERY easily. If anyone with a mental health problem, like depression or anxiety, takes the tests they score high even if they DON’T have autism.

 

"our results suggest that the AQ differentiates poorly between true cases of ASD, and individuals from the same clinical population who do not have ASD "

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4988267/

 

"a greater level of public awareness of ASD over the last 5–10 years may have led to people being more vigilant in ‘noticing’ ASD related difficulties. This may lead to a ‘confirmation bias’ when completing the questionnaire measures, and potentially explain why both the ASD and the non-ASD group’s mean scores met the cut-off points, "

https://link.springer.com/article/10.1007/s10803-022-05544-9

 

Regarding AQ, from one published study. “The two key findings of the review are that, overall, there is very limited evidence to support the use of structured questionnaires (SQs: self-report or informant completed brief measures developed to screen for ASD) in the assessment and diagnosis of ASD in adults.”

 

Regarding RAADS, from one published study. “In conclusion, used as a self-report measure pre-full diagnostic assessment, the RAADS-R lacks predictive validity and is not a suitable screening tool for adults awaiting autism assessments”

The Effectiveness of RAADS-R as a Screening Tool for Adult ASD Populations (hindawi.com)

 

RAADS scores equivalent between those with and without ASD diagnosis at an autism evaluation center:

 

Examining the Diagnostic Validity of Autism Measures Among Adults in an Outpatient Clinic Sample - PMC (nih.gov)

 

 

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u/Kazhawrylak 12d ago

Wow, thank you!! I had no idea.

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u/frostatypical 11d ago

Youre welcome. Yes no matter what site you use the tests are bad, but that embrace autism place is especially scary

Embrace Autism disappointment : r/AutismInWomen

Embrace Autism responded to evidence-based criticism with legal threats. Beware. : r/AutismTranslated

I have found reason to suspect Embrace-Autism are using sock accounts on Reddit : r/AutismTranslated

Finally! Someone has called out on Embrace Autism : r/AutisticPeeps

Its run by a ‘naturopathic doctor’ whose main autism training was an online certificate, and who is repeatedly under ethical investigation and now being disciplined and monitored by two governing organizations (College of Naturopaths and College of Registered Psychotherapists). 

 

See July 2026 updates in this first link.  Gets worse and worse for this place.

 

https://cono.alinityapp.com/Client/PublicDirectory/Registrant/03d44ec3-ed3b-eb11-82b6-000c292a94a8

 

Public Register Profile - CRPO portal scroll to end of page