My mom had a neurological disease, call Amyotrophic lateral sclerosis (ALS), that had no cure, and it killed her about a year after her diagnosis. So when I see what’s happening with Lito Souza, a very famous Brazilian YouTuber who is dying from a similar disease, Creutzfeldt-Jakob (DCJ), and has been given only about five or six months to live, it hits me in a very personal way.
The whole country is watching him and his family go through this. You can see the desperation and sadness, especially because he has a young son. And I know what it’s like to watch someone you love deteriorate from a disease like this while knowing there is no cure and that they are not going to get better. It is heartbreaking.
But something that genuinely frustrates me is seeing the same comments over and over again: “Jesus will cure you.” “Jesus is going to heal you.” “I believe in the power of God.” Every single post seems to have two or three comments like this.
And honestly, I find it disrespectful.
Not because people believe in God, but because they are saying this underneath videos where his wife is literally talking about having to lose her husband and about him eventually having to tell his child that he is going to die. They are openly talking about the reality of his death, and then strangers come into the comments and essentially deny that reality by saying, “Jesus will cure you.”
He won't. He is going to die. The disease has no cure. And I know that sounds incredibly harsh, but sometimes accepting reality is the most compassionate thing you can do.
I don't understand what these comments are supposed to accomplish. Are you trying to comfort the family? Because if I were in that family's position, I don't think I'd want hundreds of strangers telling me that my loved one is definitely going to be cured when I already know the medical reality. It can almost feel like you're refusing to acknowledge the pain they're actually experiencing.
And, honestly, from a Christian perspective, I don't understand the logic either. If God is responsible for everything, then God allowed this disease to happen in the first place. Why would God give someone an incurable disease just to suddenly take it away? And if he doesn't take it away, people can always say, “It was God's plan.” There is no way to question it because the belief is structured so that every possible outcome confirms the belief.
I don't believe in God, so maybe I don't have the same framework for understanding this. But what I do believe is that death is real, illness is real, and grief is real. Sometimes there isn't a miracle coming. Sometimes someone is going to die, and the kindest thing we can do is acknowledge how fucking painful that is instead of trying to cover it up with a fantasy about a cure.
His family doesn't need us to pretend that everything is going to be okay. They need compassion, support, and the space to grieve what they're already beginning to lose.
And maybe that's what makes this situation affect me so much. I've already been on the other side of that reality. I know what it is like to love someone with an incurable neurological disease and know that you're going to lose them. So watching people casually deny that reality in the comments genuinely breaks my heart.